Spinal Muscular Atrophy Medical and Scientific Community Call to Action
On May 18, 2007, a letter signed by clinicians and investigators from the medical and scientific community was presented to the U.S. Department of Health and Human Services (HRSA) Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children (ACHDGDNC) restating the case for spinal muscular atrophy to be included in the newborn screening efforts. Additional signatories are still being recruited and we welcome any scientists who would like to add his or her name to contact Laura Breiteneicher.
To read a copy of the letter and see who has already signed their name, click here.
Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children, Department of Health and Human Services, newborn screening, researchers, sma, spinal muscular atrophyShare This Post Via Email or Social Bookmark
(via Spinal Muscular Atrophy (SMA) Blog by Fight SMA)
