Congressman Patrick Kennedy Speaks on Spinal Muscular Atrophy Research
At the recent 2007 Fight SMA National Spinal Muscular Atrophy, Congressman Patrick Kennedy of Rhode Island addressed the attendees about spinal muscular atrophy research and the SMA Treatment Acceleration Act. The proposed legislation was developed through a collaborative effort between Fight SMA, the SMA Foundation, and Families of SMA, would establish a national clinical trials network to develop treatments that are safe and effective for SMA patients.
Conference attendee Karin Vallo captured the speech on video. Karin is a leader in the Desirees Buddies / FightSMA Southwest Chapter in Albuquerque, New Mexico, and is the grandmother of Desiree. A big “thank you” goes out to Karin for helping us make this video available!
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(via Spinal Muscular Atrophy (SMA) Blog by Fight SMA)
